Asthma

Take a moment and think of how you would treat your best friend on their worst day.

Now treat yourself like that 💕💕💕

You Are Worth Time and Care! You Are Worthy of help! You deserve contentment and joy! Happiness is for you!!

Please take care of yourself ❤️
You know your struggles and troubles best- you also know your favorite things in life 😉
Plan some good things you can look forward to each day, each week, and each month.

Looking forward to life and living is easier when you are excited for something good you know is in the future.

Gentle hugs ✨️ You are Mightier than you realize!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #RareDisease #SuicidalThoughts #Scoliosis #ShinSplints #musclespasms #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttacks #PanicAttack #PsoriaticArthritis #Psychosis #RheumatoidArthritis

I was there for almost 2 decades. Not including the 13 years I suffered in pain, alone before. I found peace in my religion as I purposely put one foot in front of the other, often not literally as my body quit on me in ways no doctor understood.

Finally a two months ago I got a rheumatologist who understood and was intelligent and not just guessing. And he wasn't going to give up like the rest of them. And then I finally got a pain doctor who wasn't terrified of medicine and at long last I got the REAL dose I needed. It has been such a long time coming!

So trust that life has things in store that others say will never happen. Trust! Have faith! Dare to dream and hope!
Become the exception, someone who doesn't settle and fight on for that happiness!

When I first found this forum I posted about how I was in so much pain I wanted to die. And in a response from a friend, one who I looked up to and still do, he said: what if tomorrow they come up with a treatment or cure for your condition?? Wouldn't you wish you held on until then?

Life is better when we hope. We live better when we hope!
Don't settle dear Mighty friends. Things will improve, you just have to give time, time.

In the scriptures there is a story of a man who suffers unable to walk for 38years. And then Christ heals him.
I can't help but think how very hard it would be so long ago to exist like that. Nowadays we have running water, toilets, walk-in showers and baths with hot water. We have refrigerators and food that we can buy pre-sliced. We have cars and various Taxi options. We have online shopping and dollar stores! And snack foods that stay good for a long while.

Even in bad health and struggles, we are very blessed. Think of your ancestors who no doubt had problems that you have but no name to put to it, perhaps like yourself. The world is more understanding even if they don't truly understand it all.

You, dear Mighty friend, have good things that pass your way. Open your eyes to them! Allow them to carry you on your way as time passes and even better things at last find you as you so very much deserve ✨️
Hold on! ❤️ each day brings you ever closer ❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #BoneSplints #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #PosturalOrthostaticTachycardiaSyndrome #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #PTSD #Psoriasis #PanicAttacks #PanicAttack #Psoriasis #PsoriaticArthritis #plantarfasciitis #RareDisease #RheumatoidArthritis #AnkylosingSpondylitis #SuicidalThoughts #Scoliosis #ShinSplints #Upallnight #musclespasms

Obviously it dramatically affected everything. And a year after I began experiencing early arthritis among a few other things. EDS I have always had and I faced horrible pain all the time though I thought it was normal. I always got compliments and awe for my strength though I didn't know any other way to be.

I came across this quote and it gave me new strength to pull from. While going through almost two years in a wheelchair I had lots of panic attacks with a terrible fear that I would never walk again.

No one knew how to help me. All the adults around had never faced anything slightly like my surgery or pain of trouble walking or even physical therapy after school.

I was the one that brought that singular understanding. And as the years followed I am the one people talk to when a decade or so later those adults or kids I knew and know now start to face challenges that involve health.

I have also been able to bring a strong understanding to kids who went on to become doctors who actually care!

And all this because I recognized that life brings unexpected challenges, but that doesn't mean we have to be hunched over struggling to handle it. We can stand up and choose to choose these challenges because we understand them and get help in handling these burdens bad health brings.
We don't have to fight alone.

Raise your voice! Fight for that better life and proper help and care!

Fight to better yourself as you bide your time, being ready for when good things come your way.

Have the Audacity to Hope!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #bedbound #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Grief #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #SuicidalThoughts #RheumatoidArthritis #Scoliosis #ShinSplints

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheerMeOn #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

I understand 💕

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #CheerMeOn #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

Nothing shows strength more than kindness on your worst days 💕❤️

Push down that anger at the world and instead use your lot in life to recognize that others may have it rough too but it will not always look like your troubles.

YOU are better than anger. Fight for a better way. Willingness to care and determination will get you much further in life than taking things out on others. You have SO much more power than the world wants you to know ❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheerMeOn #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #PanicAttack #PanicAttacks #plantarfasciitis #PsoriaticArthritis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

Rosie looking adorable as she begs forevermore scratches lol

What a struggle being so adorable! 😅🤭❤️💕✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

But now I am ALL the better for it. My family relationships are stronger than ever as we all work towards a better future.
Obviously it was really hard at first working to not only be completely truthful in how bad I was doing but also asking for help when I needed it. It is SOOO hard to ask for help!

But SOOOO worth it!

Saving myself energy and extra pain is Always worth asking for help no matter how hard it is to say the words sometimes.

If you are open to it I challenge you to ask for help when you need it and/or being fully truthful when people ask how you are doing or when you need support for good or bad emotions.

I promise the world is better when you don't have to tiptoe around others.

Plus: they ask how you are, challenge them to the truth! Maybe they will become better at asking others or answering when you give an unexpected answer 😉

Life is too short to live lies or waste it on people who don't realize your worth and pricelessness.

Do it for YOU!

Courage dear heart❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #PTSD #plantarfasciitis #PanicAttacks #PanicAttack #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

Deep breathe in, deep breathe out. Once more.

You CAN do this! One day at a time, one step at a time. Focus on the basics and you Will get through 💕
I speak from experience

Please know you are not in this alone. You look around and see no one but we are here on this site, cheering you on, wanting the absolute best just for you ❤️
You CAN do this. ❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Headache #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #SuicidalThoughts #ShinSplints #Scoliosis

All I wanted was to go south and visit relatives but no, fate was against me. It started with our old dog having a stroke, so that I had to postpone my trip to the following week (these things happen). So the following week came and while I was waiting for my bus connection to Glasgow and the coach to London as the first part of my journey, a man sidled up to me and started chatting. He related how his girlfriend had dumped him, he was suicidal, he had just come out of hospital after an asthma attack, he had been warned by the police not try to visit his girlfriend again or he would be arrested (he was twice because he didn’t obey their injunction and a third time, when he went to the village she lived in, to collect his belongings from a friend, who shopped him to the police apparently).

His tale of woes continued. He had tried to kill himself before (the rope marks on his neck proved it) and he had been beaten up so badly once that he now had a steel plate in his skull and had had facial reconstruction and it showed. Needless to say, I missed my bus, caught a later bus which arrived ten minutes too late, spent an hour and a half waiting for a midnight coach, hoping to get on, only to find it was fully booked but at least I got the last bus back to where I lived. After all this I didn’t know whether to phone the Samaritans (I was raging) or join them because of this natural talent that obviously drew waifs and strays to me (not the only time this kind of thing has happened to me). Anyway the coach company haven’t given me a refund, so that is £60 down the drain and I am thinking of changing my name by deed poll to Lemony Snicket because of this series of unfortunate events.

One last thing. I have now developed a phobia about going downtown, especially catching buses from the bus station. Can you blame me and are you surprised the coach company didn’t believe me or my cousin, when I told her why the trip was off? Even I don’t believe me, so why should anybody else and I was there?

By the way did I mention the fiasco over the senior travel card? I booked it online, only I didn't. It said the payment had gone through but after five days the card hadn't arrived so I phoned them. Technical fault led to my payment being rejected. Having only a few days before my selected date of travel, I had to rush into Glasgow and buy it direct. All that followed was just melted icing on the cake as this was the start of everything going wrong (the dog being ill followed this, leading to the first postponement).