Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Pain Girl by Melanie R.

The chronically ill that experience continuous pain in multiple areas everyday, myself included, dread the doctor office doodle I have dubbed “Pain Girl!” She’s infamously found in every pain clinic/doctor office and is said to have the ability to accurately depict the agony the chronic illness sufferer experiences with pencil smudges and a 1-10 score! Of course pain can only go to 10… said no rare chronic illness sufferer ever!
We are usually asked to circle the painful areas on a blurry drawing; labeling S for stabbing, B for burning, etc.
Such little information could be drawn for what I was experiencing with rare chronic illness. I usually had a Picasso painting to present most times! (Some say scribbles of frustration,…I say Picasso!) I don’t think I could even see Pain Girl under my swirling circles and slashes of pain. Making your doctor and yourself laugh while struggling in pain is always a plus.

So in the honor of Christ, the healing of the Body that Christ brings, and infamous pain girl, make a Picasso of your pain and healing.
Draw, paint, doodle, or get crafty making a picture of your pain girl/boy. Color the areas where you experience pain, swelling, stiffness, etc., then draw a cross, put a sticker, a heart, (whatever you want) as your symbol that:

-God is aware
-Hears your cries for relief
-you will be fully restored and healed.
-It won’t be long, etc.
Think of your own too.
Make it fun.
Please share/Post

Today could be the last day of suffering. Today could be the day of His return. Living in the body of Christ it proves that even though we are sick in body, we can heal, and be healed already. Suffer well! Healing will come!

Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth.

3 John 1:2

I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord.

Jeremiah 30:17

#MitochondrialDisease #ChronicIllness #BackPain #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Jesus #suffering #InsideTheMighty #IrritableBowelSyndromeIBS #RareDisease #Hyperthyroidism #RheumatoidArthritis

I plead as I receive.
The blood was shed for me.
I placed it on the cross,
now blessings for the loss.

My spirit, soul, and body-
all healed…
Infused His name.
He carried it all on willfully
my suffering-
for my gain.

An act of faith found worthy.
My savior,…blood was shed.
I take into my body,
the wine filled medicine.

She reached out with one touch.
A faith found strong and true.
For answers in the darkest night,
endurance shining through.

An answered prayer for healing,
soft on the wings of doves.
A witness to her suffering-
sent lifelines from above!

Malachi 4:2
But to you who fear my name, The Sun of Righteousness will rise with healing in its wings…And you will go free leaping with joy…

God is faithful! Rise & stay strong Mighty health warriors! Healing will come!
You’re already free!
IVIG immunotherapy was approved and I received my first dose today!
Praise God for this healing and answered prayer! Thank you Jesus!

#MitochondrialDisease #RareDisease #ChronicIllness #ChronicPain #InsideTheMighty #RheumatoidArthritis #SjogrensSyndrome #HypothyroidismUnderactiveThyroidDisease #IrritableBowelSyndromeIBS #POTS #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #ChronicIllness

Here is my story with CIDP. I hope I can help at least one person feel heard and less lonely.

How to Live with a Chronic Illness ⋆ One Top Knot Mama

#ChronicInflammatoryDemyelinatingPolyneuropathy

Please read my CIDP story on my blog. I hope by sharing my story, I can help make at least one person feel less lonely.

How to Live with a Chronic Illness ⋆ One Top Knot Mama #ChronicInflammatoryDemyelinatingPolyneuropathy