cluster headaches

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Hello, new to the group. Dr suggested I look for alternative ways of coping with my chronic pain as it seems the pain meds I'm on are either not working/making my other symptoms worse. Hopefully I can get some great advice here! #JointHypermobilitySyndrome #PosturalOrthostaticTachycardiaSyndrome #restlesslegs #ChronicMigraineSyndrome #ClusterHeadaches

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To my mihgty freins, my famly neer an far 🌍🌊love ya'll 🌟🎄☃️🎅

Me no dis day is tricki fore al ob us, jus wantd to say fank u fore bein u ! de speshial uniqu u dat u r , u r brabe ,strong, carin, kind an bein a speshial part ob my jorney !!!💜❤🧡💛💚💙🖤🤍🤎💜🦋 #Anxiety #Agoraphobia #Abuse #CPTSD #ChronicDepression #ChronicHeadaches #ChronicPain #ChronicPain #Disasociativedisorder #Disability #DomesticAbuse #Depression #Emetophobia #EmotionalAbuse #FunctionalNeurologicalDisorder #FearOfAbandonment #fearofjudgement #FearOfVomiting #Gaslighting #ClusterHeadaches #NeurologicalDisorder #PsychologicalAbuse #physicalabuse #Seizures #SuicidalThoughts #SexualAssault

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When did you first decide to talk to a doctor about migraine?

If you’ve experienced migraine in any frequency (chronic or episodic), you’ve probably heard that the condition can be “difficult to diagnose” because the pain is invisible.

But undiagnosed migraine often leads to a person going without proper support, symptom relief, and treatment. When did you first decide to talk to your doctor about your migraine pain? How long had you been living with it How did you start the conversation and how did it go?

I’ll post my story in the comments!

#Migraine #mightywithmigraine #ChronicPain #ChronicIllness #Fibromyalgia #ClusterHeadaches

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It's the Weekend Yayyy #sleeping #Selfcare #CheckInWithMe

Hello Mighty Family n Friends
It's the Weekend at last yayyy

Time for all the things you didn't do during the week.
Like sleeping, some much needed self care on you, or as I call it.

Me time, maybe a soak in the tub or reading a book, sitting in the sun out on the deck. Spending some time with the pups grooming them. It's all selfcare in my book, as it's good for me and Its relaxing For me.

What's your selfcare, what is your ME TIME?!

Do tell
Whatever it is
Give yourself some time in the weekend or week to do that much needed selfcare. To relax and recharge those batteries.

Love n hugs Tj
❤🧡😘🤗😎🐕🐾😼🛌📖☎️📱🤳🎭
#Bekindtoyourself #Love #Hope #Arthritis #RareDisease #TrigeminalNeuralgia #GlossopharyngealNeuralgia #ClusterHeadaches #MigraineWithAura #Bekind #Family #Friends #Anxiety #Depression #MentalHealth

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Cats playing dress up #laughterisgoodmedicine #giggleswithafriend

Good Morning Mighty Family 🖐

'I really wish my human would have children'

I couldn't help but laugh at this and also think how adorable that puddy cat looks. Boy my cats would not let Me do that to them 😅😅😅😅😼😼😼
They'd be fur flying and claws out.

Hope it brings a smile to your face today what ever you are doing.
🖐🤗❤Love as always Tj from migraine bed 😎 🛌

#MigrainesWithAura #RareDiseases #Hope #PsoriaticArthritis #InflammatoryArthritis #Selfcare #Bekindtoyourself #ClusterHeadaches #CheckInWithMe #Positivity

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What are some unexpected things that trigger your migraine?

People often think of bright lights and strong scents as “classic” migraine triggers. What are some that you’ve experienced that were surprising to you?

#Migraine #Headache #SUNCTHeadache #ClusterHeadaches #ChronicPain #ChronicIllness

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Home Alone but not alone #neighbours #CheckInWithMe

Hello Mighty Family n Friends 🖐

This migraine and the UK heatwave we are having must be having a very strange effect on me.

I fell asleep last night at about 9 pm and woke up around 11 am
My 2 pups didn't even wake me up with their usual antics to go out for a wee 💩
But alas I awoke to day 6 of this dam migraine thing 😕
But finally the heatwave has ended so that must have been why I finally slept at last.

I came out into my kitchen and my neighbour Was washing my dishes and making me a cup of tea.
She must have checked in on me 4 times today.
She has picked up my parcels and tidied up too.

The pic is of all the different uk helpline centres available.
Please copy it and save it if you are in the uk.

Remember we are never truly alone. Someone is always there for us.
Love n hugs Tj
🤗❤🌞🤞🧡💪💚🐶💩😘😁

#Love #ClusterHeadaches #PsoriaticArthritis #RareDisease #Anxiety #Bekindtoyourself #Selfcare # #Migraine #Kindness #Depression

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