exhausted

I have days where I can't wake up or function. Especially when the weather is all over the place. Well I've missed some work with FMLA protection because of the exhaustion. My wife has had it. She refuses to try and understand. It's been 15 years of this disease and I think she has finally had enough of me and it. To bad I can't walk away from the fibromyalgia too. Just lost and alone. 25 years together. Just need some advise. Some support.

Guys, I'm really struggling at the moment. Every single day of my life, I'm in pain. I've accepted it as a fact of my life. But a few weeks ago I randomly injured a muscle in my lower back that has been locked/cramped up ever since, and is pretty much crushing my sciatic nerve. I'm getting such painful burning-aching sensations CONSTANTLY. There is no reprieve.

I can't get comfy when I'm sitting, and I'm barely sleeping at night. My doctor has examined me and she's pretty sure it's my sciatic nerve that's been pinched and that I need the appointment for physio. But the earliest they could fit me in was 23rd October - 10 days away! My doctor has prescribed a course of diazepam (valium) to help ease the muscle and try and abate the muscle spasming around the nerve. Which works to an extend but I really can't do much. I can't lift anything heavy, etc.

I am truly miserable right now. And I have been for the last two weeks since the injury. It just doesn't stop... My nephew came over on Wednesday and I couldn't play with him the usual way I do - chasing him about, lifting him up and bouncing him. And he just kept coming and cuddling my leg, raised his arms at me and said; "Up!" It broke my heart when I said no. He walked off with his head hung down and his bottom lip poking out.

Since the injury, I've eaten a LOT of junk food. I just cannot stop, and I don't really care all that much. I know I'm comfort eating (I used to do this a lot in the past), and I know it's not good for me. I'm just finding it really hard to give a crap about it.

What should I do? I'm so close to tears... I need a nice long, tight hug/cuddle. It's so hard to keep going.

#POTS #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #FattyLiverDisease #NAFLD #Diabetes #BPD #BorderlinePersonalityDisorder #InterstitialCystitis #ChronicPain #sciatica #BackPain #exhausted #mentallyexhausted #feelingdefeated #chronicillnesswarrior #Advice

Wishing there were more hours in the day...sometimes. #exhausted

I wish I could snap my fingers and no longer exist. Just poof and no more me. Tired of the pain the struggles the physically and emotional crap in life. I’m ready to be done. I don’t want to keep doing this. Im not living i just exist I don’t want to. I have few people in my life that would care. Most wouldn’t even notice i was no longer around. I’m just tired of it all. I don’t want to be strong or cope or try to convince myself that being upright for a day every 6 weeks ifs ok and living. It’s not living I don’t want to do this any more. I don’t want to be strong anymore I’m ready to give up #tired #exhausted #Pain #Depression

Im having one of those days where everything feels challenging. Getting up to go to the bathroom? Difficult. Preparing decent meals? Impossible. Washing my hair? The biggest challenge. My chronic skin condition and the fatigue/dépression that accompanies it has drained me.

My only comforts have been my amazingly patient and supportive partner and my Nintendo switch (lol). I’ve stayed in bed for the majority of the day and just feel like I was hit by a bus. I know tomorrow is a new day but I can’t help but feel I wasted this one… and maybe that’s ok?

#Thoughts #exhausted #Eczema #Depression