fatigue

My new seat for my wheelchair hasn’t come yet, but my sticker has…I have three stickers conveying this message to others on my wheelchair because there seems to be a misconception about wheelchair use and their users…
If you want this sticker or something like it there is a good variety on RedBubble.
Take care Mighty Warriors ❤️💕🌠🦄

Wow... what I long night. This is the second night that my good old brain kept me wide awake. My thoughts are so loud and scattered. I feel everything, and every movement takes so much effort. So the plan is to take it easy today and be gentle with myself. I thought this quote was hilarious! (sorry if some people don't get my humor)

I'm so tired, devastated, exhausted...Just last week my dear cat passed away, just yesterday we scattered her ashes..
And just Friday evening there was a terrible senseless terrorist attack in my city😣Hundreds of people are dead or injured...Luckily my relatives, friends and me are safe...
I just can't bear all this any more...My heart is broken,my head is torn asunder becsuse of these last events...😖💔
#Grief #Fear #Anxiety #Fatigue #ChronicIllness #MultipleSclerosis #Depression

I searched through all the groups to see which seemed applicable to where I am now. I was diagnosed with FMS 29 years ago, after experiencing - what was being called fibroitis by a mostly “it is real”-denying medical establishment - for many, many years of migraine, overwhelming fatigue, muscle pain, etc.

I read a book about what to pay attention to in your body in mid-life and suggestions of what it may be if you experience these symptoms kind of reference. It’s way easier now to find information, well, and disinformation, am I right?!?! At the time I was having such pain in my neck and shoulders and my back.

I was walking across an outer office, going to my own, when someone whacked me right across my upper back, later described by me: “it was a baseball bat.” But it was not. No one hit me. No one was there. It was the signal : THIS IS ABOUT TO GET VERY REAL. I didn’t know that then, but here, nearly 30 years later, yeah, so very real.
Anyway that book described what I was dealing with, called it by name. You may have fibromyalgia. Eureka!!
So it began - knowing what it is or what some things are - years of learning and suffering. Retiring helped a lot with the pain, because so much stress was lifted away. That was 17 years ago. And medication. Better body mechanics learned. All that goes with it. The fog and fatigue now seem like plagues. Muscle weakness.
I would love to get enough sleep.
If you are still reading this way too long missive, you will be glad to know I’m too foggy and tired to keep going for now. #FibroFog #Fatigue

When our figurative cup is empty, it means our energy is depleted, we’ve run out of spoons, and we’re at a greater risk of burning ourselves out. Stress, mental and physical illness, overwhelming responsibilities, and trying to meet unreasonable expectations can all take away from our cup.

So what can we do to refill our cup? As cliché as it sounds, self-care can bring us back to baseline. It’s important to balance obligations and tasks that require us to pour from our cups with activities that bring us joy and replenish our energy. These activities might look like returning to a favorite hobby or getting a full night’s sleep.

Do you know what fills your cup? How can you make replenishing your cup part of your daily routine?

It’s important to note that what works for one person might not work for someone else. Our health conditions can also make it easier for our cups to empty, as well as more difficult to fill back up. It’s all about finding the balance that works for you. 💖

#MightyMinute #selfcare #MentalHealth #SpoonieLifeHacks #Disability #ChronicIllness #ChronicPain #Fatigue #CheckInWithMe #Caregiving #Parenting #52SmallThings #RareDisease

What symptom are you tired of explaining to others?

I feel like it comes with the territory of having a chronic physical or mental illness of any kind: We repeatedly have to explain our symptoms to others. While it’s nice that folks who don’t know what it’s like to live with a health condition want to learn more about how we’re affected by ours, it can be exhausting to serve as educators on our symptoms while dealing with those same symptoms.

For today’s Mighty Minute prompt, let’s have a good old-fashioned vent session. Sound off in the comments about the symptom you’re tired of explaining to others!

Here’s mine: I’m tired of having to explain my fatigue! Not only is fatigue a symptom of basically every mental and physical condition I live with, it is the one I am most consistently annoyed by and the one I am most self-conscious of. It doesn’t help when others ask why I’m so “lazy” or “tired” all the time. I can’t even begin to fathom the number of times I’ve had to explain to able-bodied people how my tired is far, far, far different from their tired. And that, no, drinking more water, getting more sleep, and going for a run first thing in the morning will not alleviate this kind of tired.

#MightyMinute #CheckInWithMe #MyalgicEncephalomyelitis #EhlersDanlosSyndrome #Fatigue #ChronicIllness #MentalHealth #ChronicPain #Disability #RareDisease #BorderlinePersonalityDisorder #Schizophrenia #DissociativeIdentityDisorder #Migraine #Spoonie