Diagnosed but undiagnosed
Hi all
I started with pain, slipped disks, joint and skint problems from a very young age, I’ve had knee ops, carpal tunnel ops all sorts, about to years ago my symptoms went crazy, fatigue, pain, swelling, rashes, migraines, pins and needles, shooting pains, feet goin floppy and unable sometimes to walk, I barely sleep because of the pain in my hips, knees, shoulders and feet, I have raynauds really bad, I’ve had to give up my career, my life as I know it is over, I’m symptomatic but still don’t have markers in blood, I’m seeing numerous specialists that think I have MCTD but r unable to isolate what and how many autoimmune diseases I have, I have 1000,s of picture that I take daily and a log to show my specialist, it’s rubbish, now they have also diagnosed fibromyalgia, I’m on extremely strong pain meds but so far because of clear bloods they can’t find anything to help with my symptoms, the worst thing I get off people is ‘well you don’t look ill’ trying to now work out who I am because I really don’t know anymore, so hard without a definitive diagnosis. The depression hits hard and I no longer make plans with friends and become so anxious when leaving the house.