pain

#Anxiety #Pain #breath #shortnessofbreath #help #Support

Back story. A car accident in 1995 destroyed my back. I’ve had Discectomy, Laminectomy, lumbar fusion, cervical fusion then a revision to the cervical fusion. All failed surgeries much to my dismay. Countless procedures, nerve blocks, neurostimulator.

I had a wonderful neurosurgeon and pain management doctors for over 10 years. Within 4 months of each other my neurosurgeon died and pain mgmt Dr retired with no notice. I was stunned and left bereft. I had to start the search over again.

After 6 months I finally found a pain Dr to take me. He took me off the morphine that was working and put me on Belbuca. Suppose to give 12 hours of relief. Pain set back in after 6 hours. By the 2nd “dose” I was doubled over with stomach pain. More than I’d ever felt before. I called, nothing he would do until the next appt. He said he prescribe 15 - 15mg morphine and a lower dose of belbuca. I told him again of the stomach pain. He assured me this would be ok. Nope. Same 6 hours of relief. Same intensity of stomach pain. I nursed those 15mg morphine pills until the 3rd appt….

I am very stressed, agitated and in pain. He sits down on the stool, looks at my chart then at me - “Pain meds cause pain. I’m not giving you anymore, besides, you only have arthritis”. In my head I’m screaming what?!? I can’t believe what I just heard.

He gets up and walks out, as I’m walking towards the exit the receptionist asks if I want to make my next appointment. I stop, look at her, trying to keep the rage out of my voice and tell her I won’t be coming back. That I’ll need my medical records. She prints what’s in the system on the slowest printer ever. Said she’d send this visits record to the new Dr. I said no, I’ll come back and get it. How long? She said 2 weeks. I leave.

When I get home I start the search over again. 3 days later I find a pain mgmt group that will take me only after they receive my full record from the Quack.

I called repeatedly for my last visit record. Their phone system was a joke. You’d listen to this long intro then either you’d get a machine to leave a message or the call would terminate. Not exaggerating, it would end in the call being terminated 9/10 times. When I first called this place they actually answered the phone. Never since.

Finally, after 6 weeks I get the call the Dr has finally given my last visit notes to be transcribed and they are ready. “You don’t have to drive here, I fax these to your new doctor”. No, I don’t want you having anything to do with the new practice.

I got my complete file, faxed it to the new practice and found a practice that is proactive along with giving me pain meds again that work for me. I’ve been going there since.

There are great, good and quacks out there, don’t give up or settle for someone who doesn’t believe you or care. #back #chronic #Pain

I'm having the weeps right now. I don't know why. I thought i was mentally prepared. I was looking forward to a break from stressfulwork and resting/recovering from (hopefully) temporary back pain. My husband will be visiting his mom tomorrow.

I'm split. I get to organize my time to my liking, writing or reading if I want to. Self care (physical therapy or rest). Music for me.

But I'm feeling alone and frghtened and old. (64, feel likee 84, but doubt I will reach 70--I hope not.)

Rambling, and mucking up this post in this app. I'll write to myself and call a warm in the morning after m husband leaves

So stressed and sad. I’m tired of being in pain everyday. I can’t get any sort of answers for my medical problems and it just gets hard. My husband dosent get it and isn’t very helpful. It’s so hard to just make it through the day sometimes.

My body has been hurting really severely and constantly for the past 3 and a half years now. I've tried and done it all. Medicines, heating pads, pain relief balms and creams are essentially used by me literally everyday. I've done alot to not be in pain. Exercise, yoga, meditation, mindfulness,, literally everything. But nothing truly works. Yes some stuff helps to calm the severity of it. But it never actually goes away no matter what. It's just been my life for the past 3 years. Does anyone have any unique tips that are not known or popular that I can try? It's the most severe in my legs and lower back. Those parts of my body just feels like it has chain balls attached to them. Other parts hurt too but the lower half is the absolute worst.
#Pain #ChronicIllness #ChronicPain #Fibromyalgia #ChronicFatigue #Arthritis #Depression