Caregiving

Join the Conversation on
Caregiving
14.4K people
0 stories
1.5K posts
About Caregiving
Explore Our Newsletters
What's New in Caregiving
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

What’s your most low-maintenance health condition?

We talk a lot on The Mighty about the symptoms, experiences, emotions, and diagnoses that impact our day-to-day — some of us are more weighed down by physical illnesses, while others manage an all-consuming mental illness or caregiving role. But one perspective we don’t talk about as much are the conditions that we just kind of… forget about? (We know, we know, sounds fake. 😅)

Whether it’s because you’re in remission or very rarely experience flares or episodes, have another condition that causes more trouble, or live with a diagnosis that you were born with and don’t really put that much concerted, conscious effort into managing it — it’s time to choose your “golden child.”

For Mighty staffer @xokat, it’s definitely her rare headache disease, SUNCT syndrome. Thankfully she hasn’t been in a pain cycle in over a year and a half (it’s very common for the disease to enter long periods of remission), and she only takes one preventive medication to keep the attacks at bay. Other than that? Absolutely out of sight, out of mind. It’s very rarely something she thinks about, plans around, or talks about. What a treat!

What’s that low-maintenance condition for you?

#MightyMinute #ChronicPain #ChronicIllness #RareDisease #Disability #MentalHealth #Anxiety #Depression #Caregiving #Cancer #Autism #ADHD

52 reactions 29 comments
Post
See full photo

What are your biggest challenges when it comes to planning ahead?

To plan or not to plan... that is the question — and also happens to be the topic we will be exploring this week!

We all know that living with a health condition (or several) can pose some unavoidable challenges, ones that can blow up and disrupt premeditated plans or schedules. It’s one of the hardest, trickiest variables to plan around, and this community knows that better than most.

What is it like for you to plan ahead? What challenges often arise?

#52SmallThings #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #CheckInWithMe #Caregiving

38 reactions 27 comments
Post
See full photo

Care Can't Wait — Because keeping folks in their own homes is healthier & cheaper

Disability advocate Bob Kafka talks to the expert, Nicole Jorwic, coordinator of the Care Can't Wait Coalition. Nicole gives you a crash course about the movement and the latest news. For seniors, children, people with disabilities, and parents — care can't wait.

www.ksfr.org/show/barrier-free-futures-show/2024-04-27/04-27...

#CareCantWait #HomeCare #childcare #Caregiving #MultipleSclerosis #ChronicIllness #newlydiagnosed #Disability

4 reactions
Post
See full photo

'New to MS' Resource Guide & last call for tonight's virtual N2MS program

Because the diagnosis is heavy, this @nmss guide is packed with links to info and resources to browse when you are ready.

cdn.sanity.io/files/y936aps5/production/9e30e7f6895ef8a7f0f4...

There's still time to sign up for tonight's @mssociety's New to MS virtual program at 6 PM Central. Info, experts, treatment tips, and others with MS to meet.

www.nationalmssociety.org/understanding-ms/newly-diagnosed/n...

#NewToMS #MultipleSclerosis #MightyTogether #ChronicIllness #newlydiagnosed #Disability #Caregiving

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
4 reactions
Post
See full photo

Who is a part of your public, private, and secret life?

Novelist Gabriel García Márquez once said, “Everyone has three lives: a public life, a private life, and a secret life.” While there are a variety ways you could interpret that statement, we’re most interested in this angle: If you examine our own life, who do you let into those different versions of yourself?

Here are some definitions to get you thinking:

👋 Public life: The most “common” life we each have — the details we readily share or present to the world. It’s not wholly superficial, but it’s definitely a surface-level manifestation of ourselves.

🔒 Private life: This is one tree ring deeper. These people know some of your struggles and might celebrate your strengths. There’s a more profound sense of trust, but still a wall to break through at times.

💜 Secret life: These people know your darkness, your unsteadiness, your soul, your quirks. You trust them with your heart and your mind. They tend to be your safe space.

#MightyMinute #CheckInWithMe #MentalHealth #Trauma #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Caregiving #Grief #Autism #ADHD

27 reactions 14 comments
Post
See full photo

What area of your life do you make lists for the most?

There are so many different types of lists we can make!

From medical tasks to groceries, ones for work, errands, or finances, to just-for-fun ones like bucket lists — what area of your life requires the most list-making? The least?

#52SmallThings #MentalHealth #CheckInWithMe #Anxiety #Depression #ChronicPain #ChronicIllness #Caregiving #Autism #ADHD #RareDisease #Disability #Cancer

36 reactions 25 comments
Post
See full photo

What phone call have you been putting off?

A little louder for the people in the back: Phone calls are tough! And unfortunately, when you live with a bunch of health conditions, the phone calls are even more important and plentiful it seems. And there are a lot of things that contribute to that. How long will the phone call last? Do you know the person? Are you fearful of being misunderstood? Does it drain your limited energy reserves? Does brain fog make it really difficult to communicate succintly?

Mighty staffer @xokat has a Ph.D. in avoiding phone calls. She really needs to call and reschedule her upcoming dermatology appointment but she just can’t get her brain to do it. 😭 What about you? What phone call do you need to make that you just haven’t been able to yet?

☎️ P.S. For anyone who struggles with phone anxiety, we’ve got a whole collection of stories just for you: #Anxiety

#MentalHealth #MightyMinute #SocialAnxiety #Depression #Anxiety #ChronicPain #ChronicIllness #RareDisease #Disability #CheckInWithMe #CheerMeOn #Grief #PTSD #Cancer #Caregiving #Autism #ADHD

37 reactions 25 comments
Post
See full photo

Tomorrow 5/9 — "New to MS: Navigating Your Journey" virtual program

Connect and learn with others who are new to #MultipleSclerosis and navigating their own journeys. You'll get info about MS and its symptoms, and ideas how to manage your MS. Ask questions of a health care professional, and share your own experiences.

This @MSSociety program is offered virtually and in-person. The virtual program repeats every 2nd Thursday of the month.

Sign up, or find a program near you: www.nationalmssociety.org/understanding-ms/newly-diagnosed/n...

#NewToMS #MultipleSclerosis #MightyTogether #ChronicIllness #newlydiagnosed #Disability #Caregiving

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
5 reactions
Post
See full photo

List 3 things that bring you joy.

Let’s make a fun list today, Mighty family! What are three things that bring you joy?

Here are Mighty staffer @xokat's three joyful things: reading for hours on end, her dog’s smile, and sharing an extra hot cup of coffee with someone she loves.

#52SmallThings #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Caregiving #Cancer #Autism

160 reactions 74 comments