Chronic Myelogenous Leukemia

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3 Tips to Make the Most Out of Your CML Care

There’s no doubt about it: the COVID-19 pandemic has shaken things up when it comes to managing chronic conditions, including chronic myeloid leukemia (CML), a type of cancer that starts in the blood-forming cells of the bone marrow and invades the blood. About 15% of leukemias in adults are CML, according to the American Cancer [...]
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There Isn’t Such a Thing as a “Good Cancer”

If you’re living with a chronic condition, it can sometimes seem easy to compare your experience to another’s story and suggest that one is “better” or “worse” than the other. This is something we, as the chronic condition community, do often; we see a loved one going through a difficult experience and decide that our [...]
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Ldagata
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@ldagata
ChronicMyelogenousLeukemia 11mo
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I am new here

Hi all, I'm very tech savvy but for some reason I'm having difficulties navigating this site. So ypu might see 2 posts from me 🤷🏽‍♀️ I was diagnosed with CML and Cervical cancer in 2005. I have 2 autoimmune diseases and heart disease. My CML story was featured on here April 21. I didn't know it had been posted until I searched and there it was. 8 hours of taping squeezed into 4 minutes is funny. There are a few misedited info but nothing crazy, just personal info, such as, I I have 3 months until I'm 58 and I no longer have a fiancé. I'm ok with that but the rest of my life is a disaster. Feel free to follow, hit me up, whatever. I'll figure this out. 😂 #ChronicMyelogenousLeukemia #cml #Leukemia

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Ldagata
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@ldagata
ChronicMyelogenousLeukemia 11mo
See full photo

I am new here

Hi all, I'm very tech savvy but for some reason I'm having difficulties navigating this site. So ypu might see 2 posts from me 🤷🏽‍♀️ I was diagnosed with CML and Cervical cancer in 2005. I have 2 autoimmune diseases and heart disease. My CML story was featured on here April 21. I didn't know it had been posted until I searched and there it was. 8 hours of taping squeezed into 4 minutes is funny. There are a few misedited info but nothing crazy, just personal info, such as, I I have 3 months until I'm 58 and I no longer have a fiancé. I'm ok with that but the rest of my life is a disaster. Feel free to follow, hit me up, whatever. I'll figure this out. 😂 #ChronicMyelogenousLeukemia #cml #Leukemia

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Despina Moissidou
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@despinamoissidou
Conquer Your Mind 11mo

New, looking for peace of mind

Hello everyone! I hope you are all doing well... My name is Despina and I am new in this community. I don't know how to start exactly, and what to say, so here is my thought: I got recently diagnosed with ADHD and CML (Chronic Myeloid Leukemia). While the latter can be manageable, despite being a type of blood cancer, ADHD worries me more. I suspected of having ADHD the last couple years and now I am 50.I've always had that constant noise in my head (including other features), plus anxiety and as the title of the group says, this is what I want to do: conquer my mind at last. So, I will be happy to hear any tips, your thoughts, to talk , to learn etc. Thank you for your time, nice to meet you all! :)

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Cancer

A Roller Coaster Filled With Twists and Turns: Life With Chronic Myeloid Leukemia

Learn More About Lynne’s CML Journey Here Lynne never thought she’d take part in a clinical trial. But after struggling to find a treatment that kept her condition in check—and didn’t give her intolerable side effects—the possibility of finding the right medication for her outweighed the perceived risks. And finding the right treatment was critical. [...]
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Dianne
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@dcarbajal31
Motivation 1y

Good Cancer #cml #Leukemia #good #BloodCancer

I am tired of being told that I have a good cancer compared to other types.
I am tired of being told that I am strong.
I am tired of being told to accept my healing.
I’m tired.
I’m tired of it all.
No, it’s not a good cancer. It’s still CANCER.
Yes, I am strong, but no amount of resilience will cure a life long blood cancer.
And,
What healing? I’m still dealing with it and will deal with this the rest of my life.
I can’t even get the medication going with out breaking into a rash.
I don’t have energy.
I don’t have motivation.
I just dont.
But,
I’m trying.
I’m trying to get back into the swing of things.
I’m trying to move past this diagnosis.
I’m trying, but it is exhausting.

#Motivation #Support #Cancer #ChronicMyelogenousLeukemia

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Dianne
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@dcarbajal31
Motivation 1y

Good Cancer #cml #Leukemia #good #BloodCancer

I am tired of being told that I have a good cancer compared to other types.
I am tired of being told that I am strong.
I am tired of being told to accept my healing.
I’m tired.
I’m tired of it all.
No, it’s not a good cancer. It’s still CANCER.
Yes, I am strong, but no amount of resilience will cure a life long blood cancer.
And,
What healing? I’m still dealing with it and will deal with this the rest of my life.
I can’t even get the medication going with out breaking into a rash.
I don’t have energy.
I don’t have motivation.
I just dont.
But,
I’m trying.
I’m trying to get back into the swing of things.
I’m trying to move past this diagnosis.
I’m trying, but it is exhausting.

#Motivation #Support #Cancer #ChronicMyelogenousLeukemia

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Mighty Partners
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Cancer

Al Kept Searching for the Right CML Treatment—and You Should Too

Al is an actual CML patient and has been compensated by Novartis for his participation in this story.   Learn More About Al’s CML Journey Here “Plans are made to be broken.” This common phrase may not have been coined with health in mind, but most anyone who lives with a chronic health condition would [...]
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Mighty Partners
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Leukemia

There Isn’t Such a Thing as a “Good Cancer”

If you’re living with a chronic condition, it can sometimes seem easy to compare your experience to another’s story and suggest that one is “better” or “worse” than the other. This is something we, as the chronic condition community, do often; we see a loved one going through a difficult experience and decide that our [...]
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