lifewithlupus

Living with Lupus means picking your battles wisely.
Doing dishes for 10 minute, means I have to sit and rest for half an hour.
Taking a half hour walk with my husband and son, means I usually have to take an hour nap.

Going to a KISS concert, ment my ass was stuck in bed for the following 3 days.
But let me tell you, I dont regret it. I am beyond grateful I was able to go. Sure the next 3 days were hell.
Was it worth it?
ABSOLUTELY.

For me, it wasnt an option. KISS is on their finale tour. I was not going to miss it.
So yeah. I was laid up in bed for 3 days, but I have a precious memory I’ll cherish forever. #SystemicLupusErythematosus #AutoimmuneDisease #lifewithlupus #empowered

Lupus took everything I knew about my body and dumped it down the garbage disposal.
Yep.
Being diagnosed with Lupus not only means I’m sick, it means I have to re-learn all my limitations. I have to learn what foods I can no longer eat. What physical changes I must make. I have to learn how the weather changes effect my symptoms. Adjust how I dress so I’m protected from the sun, yet comfortable.

Now, getting ready means applying my makeup a little at a time over a few hours because if I do it all at once, it drains me and I have to lie down to rest.
Taking a shower only happens once my son is in bed and I’m preparing for bed because it wears me out EVEN THOUGH I HAVE A SEAT IN MY SHOWER.

So many things that were normal for me have become things I just can’t do daily or for extended periods.

Adjust. Don’t give up.
Lupus may slow me down, but it will never stop me!!!
#LupusWarrior #keepfighting #AutoimmuneDisease

Lupus makes me feel like I’m constantly falling apart. I can’t keep up like I used to. I can’t go on long runs in the woods to relieve stress. I can’t stay up all night playing video games or finishing a cosplay. I struggle to chase my toddler around the house. I can barely make it through a full day at work.

So uhhhh yeah, sure. My body is a temple. An old decaying temple. Falling apart. Pretty sure its got a curse or two. Maybe three.

#AutoimmuneDisease #Lupus #lifewithlupus #LupusWarrior

Lupus changed my life. My diagnosis flipped my entire world upside down.
Hearing my diagnosis back in May (2019) was heartbreaking, yet gave me clarity.
The cosplayer in me finally understood why I was struggling so hard to survive conventions.

I have had to slow waaaay down on my cosplaying and modeling, but I’m not quitting. Nope.

Lupus may take certain things from me, but cosplay is not one of them.

Currently, I’m not making any new cosplays or props. Its just too much for my body to handle while my immune system shuts down (such a joy that is 🙄).
So I am only working with cosplays I have already completed.
I’m also only attending local conventions. My first con since being diagnosed will be in November.
I’m anxious and worried about it, but also excited, as it has become one of my favorite cons to attend.

Slow me down? Yeaaaah. Its just the fact of how Lupus rolls.
But bring me to a full stop?
HEEEEELL NO.

I’ll see you all at Neko Con 2019!
✌🏻😜 #lifewithlupus #cosplayer #cosplaylife #autoimmune #SLE #SystemicLupusErythematosus #Lupus #LupusWarrior