#CheckInWithMe: Give and get support here.

Join the Conversation on
#CheckInWithMe: Give and get support here.
188K people
0 stories
27K posts
About #CheckInWithMe: Give and get support here.
Explore Our Newsletters
What's New in #CheckInWithMe: Give and get support here.
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Evening Accountability Post 3/28/24

You have a choice to post in the comments:

*Evening blood sugar numbers
*Your wins and/or challenges
*Ask questions

Disclaimer:
Managing diabetes will be different for each of us, so keep postings and responses respectful and nonjudgmental. We are not healthcare professionals; therefore, always seek medical clearance before making changes to your treatment.

#Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #ChronicIllness #CheckInWithMe #MightyTogether

Post
See full photo

Morning Accountability Post 3/28/24

You have a choice to post in the comments:

*Morning blood sugar numbers
*Your wins and/or challenges
*Ask questions

Disclaimer:
Managing diabetes will be different for each of us, so keep postings and responses respectful and nonjudgmental. We are not healthcare professionals; therefore, always seek medical clearance before making changes to your treatment.

#Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #ChronicIllness #CheckInWithMe #MightyTogether

1 reaction
Poll

Wishing you all the day you need. ✨

Select all that apply
30 days left
🌷 Beauty
☀️ Optimism
🎈 Fun
🌈 Joy
⭐️ Creativity
🌙 Rest
🍃 Growth
💪 Strength
💖 Love
🍎 Wisdom
13 reactions2 comments
Post
See full photo

What are 3 personal boundaries you can set with yourself?

Now that we’ve discussed what boundaries are and how they look for us, let’s start to wind down this week’s challenge by setting three personal boundaries with ourselves. Remember that it’s totally OK to have needs and want to express them!

Here is Mighty staffer @xokat’s boundary list:

📱Not forcing herself to respond to texts right away if she needs a break from screen time or doesn’t have the emotional bandwidth to respond. It's very likely that nothing is an emergency!

💻 Shutting down her laptop when the work day is done and not getting on it until the next day — it helps to separate work from life since she works from home.

🗓️ Not making plans on Saturdays, as tempting as it is. (She desperately needs the recovery time!)

#52SmallThings #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #CheckInWithMe #selfcare #Caregiving #Cancer #Trauma #Grief

10 reactions 9 comments
Post

Mighty Family!!!! I have missed you guys so much and thought and prayed for you daily ❤️

Months ago I was at my very worst. My health had gotten so poor that I was fully bed bound and unable to do anything on my own. I also needed constant care with my memory getting so bad I forgot my name, who my family was, all friends a missing blavk hole where they should have been in my memory. I kept getting lost and confused not remembering basic words and my hands were still excruciating with their inability to work getting even more drastic. My pain was a 10+ though doctors only think pain is a 1 to 10 we know it still can rise to the thousands.

Suicidal thoughts were so bad I was actually planning though losing a best friend's to suicide at 15yrs old still kept me and will always keep me from taking a step no one can come back from that haunts family and friends and leaves things so very messy and heartbreaking.

My so-called pain doctor was still doing nothing after 3 years and countless appointments begging for help I'm any form. He kept me on the same teeny tiny dose for years and wouldn't try any other meds or any other options. I had had no episodes ever of overdose or failing any drug tests but still he refused to help at all despite my first appointment with him where he promised to help me get to where I could shower and dress myself daily.

I wanted to ditch him as my doctor soooo many times despite him being my third and last option since we hadn't been able to find any replacement.
I realized the stress and misery he brought me always and especially after every three month appointment. It wasn't worth the useless dose of medicine I was on. Many doctors left me in a lurch to taper off my meds on my own. I knew how to do it so I called and said I was dropping him as my doctor. From that moment on I felt relief like the biggest weight was gone. Yes my pain was excruciating but my mental health was the biggest mess because of so many doctors refusing to help and leaving me since I was 'too complicated for them'. They just didn't want to put in the work at time.

Why be a doctor if you don't want to help anyone?!

Steadily my mental health improved immensely. I had moments where I was happy though still in pain. Naturally I am a very optimistic and happy soul but moving to a new state and having the cruelest doctors unsurprisingly made me so much worse.

I have a home health nurse that actually wants the very best for me and that was priceless and enough.

And then I got a brilliant and lovely rheumatologist who actually asked intelligent questions, explained answers, and was invested in taking as much time as needed to finish solving my health. He UNDERSTOOD!!! And at my second appointment with him he told us the answers we had been searching for for 17yrs! Since I was 13.

On top of my many inherent diagnoses I had psoriatic arthritis spine arthritis, and rheumatoid arthritis!!!!
The thing that we all thought was lupus but just barely didn't fit was the psoriatic arthritis!
It was the last piece of a puzzle we had tried solving many a time.
Interestingly I had finally narrowed my research to these diagnoses and was months away from figuring it out too.
But I was very happy to have the answers early!

My first appointment with the rheumatologist he gave me arthritis medicine and WOW did it work and so much better than any medicine my hundreds of doctors over the years had tried.
My hands improved!!!! I had feeling in them again and was able to do so much more than I had since I was 16 when I had my waist down reconstruction surgeries that would lead to arthritis all over my body especially to where I was completely unable to use my hands by 17. It was so embarrassing and painful that my body seemed so intent on not working eight. Oh how I just wanted you be normal!!!

And my last but of good news is I at LAST got a new pain doctor after being without officially for three months. My mental health anxiety and depression had improved so that my stress and thereby my pain had decreased to #9 on the pain scale!!! After being a 10 for almost 8 years!!!!!

My new pain doctor was COMPLETELY the opposite of my last one.

From a guy who ALWAYS worse fancy suits and thousand dollar shoes to one in jeans and a t-shirt.
From a guy who never smiled and wouldn't put in time and effort to a guy who smiled the whole appointment and was ready and Excited to put in the work to help me live my very best life!
From a guy who was too proper and cold to one who was so friendly and happy about his job.
From one who was terrified of any teeny hit of using medicine to one ready to take any risk if it meant helping his patients be safe but with less pain.

My new doctor was like the twin of actor Vin Diesel and he was so SO SO tall!
Even better since the drive is so hard for patients to do always, he would do telehealth for two appointments, one in person, and then another two telehealth appointments etc. Yay!!!!! Hallelujah!!!
Lol I was and still am so happy! And he wanted a telehealth appointment a week after the first appointment yo make sure my new meds were the best option.

For YEARS I have wanted a doctor who was there to help always and one who helped me with my meds rather than drop me in a black hole and leave all alone to figure out and guess by myself. To actually be a TEAM and work together to help me help my body so I would LIVE like I had begged all my doctor to help me to no avail! I could have a LIFE that I loved and do fun things and spend time with my family!!!! No more sleeping life away in pain and misery and hopelessness!!!!
It only took 17 years! Haha!

So now I am BACK and back to my happy self. I still have aches and pains full body and I have all my health issues and more besides but I am in a better place than I have ever been.

All of your support and love and encouragement to take time for ME was what I needed. I am so thankful for it and for all of your help over these many years.

Now if only it could get easier to post with no problems like before I would dare to call life quite perfect right now ;) 🙏

So consider this a reminder thar life is worth it! If things suck now, just remember that if one day they come up with something that can help you and your conditions, I PROMISE you will want to be around then to live your best life.

Hold onto hope! DON'T GIVE UP!! Please please don't. Through sheer will and the grace of God I am still here and gosh do I look back now and say it was worth the wait I wouldn't want to relive it lol but having a possibility to go to the movies again and do fun things out in the world with my family? It is priceless! Please hold on. Please. You and your best life are worth it! You are Not alone in this.

I am cheering you on and I am on your side. Your happy is out there! You CAN do this!!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Insomnia #Lupus #Lymphedema #Headache #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #PsoriaticArthritis #RareDisease #RheumatoidArthritis #AnkylosingSpondylitis #MentalHealth #MemoryLoss #MightyTogether #SuicidalThoughts #Scoliosis #Migraine

56 reactions 23 comments
Post

Hopeless and Out of Strength #MentalHealth #Depression #CheckInWithMe

I don’t know how much longer I can do this. I have no support, and no one to listen or care. I feel unimportant and unvalued. I can’t even seem to get much support from here. I don’t think things are ever going to get better. I have no way out.

(edited)
1 comment
Post

Today was a horrible day

I don't feel good at all. I had 2 big BM today and my hemorrhoids are bleeding. I don't know how to deal with this pain. I reached out to my girlfriend and my ex girlfriend and they were very supportive. But I'm not sure where I put my tucks pads. I didn't really look for them much. I was gonna try taking a bubble bath and soak my ouchy bits but I didn't have any energy to do it.

I talked to my mom today and she was nice this time.

I'm gonna try to get some sleep tonight but the pain is at least a 7. I gotta put CBD cream on my neck and then I can take a sumatriptan. Last night I had a migraine and the CBD cream helped. I'm hopeful.

#CheckInWithMe

Post

Feeling awful

Having an ME/CFS flare up and feeling absolutely awful. How do you care for your well-being or bring any glimpses of goodness into flare up days when energy and motivation are non-existent?
#ChronicFatigueSyndrome #ChronicFatigue #MyalgicEncephalomyelitis #ChronicIllness #CheckInWithMe

15 reactions 6 comments