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    Shine Bright Like a Diamond

    #ChronicFatigue #Fatigue #fibromyalgiafatigue #exhaustion

    So on a personal note we flew high accomplished many things sent love out in many directions only to land on the couch and that’s IT. #crash #Drained #nap

    What IT all means is while we feel like we are getting better trying to do the things we use to do or remembering things that we could have done before diagnosis. We find ourselves in the cycle of #Updays #Downdays .

    This is incredibly frustrating and irritating to say the least. How does one do all the things one is supposed to do when they don’t have enough #Energy and suffer from #ChronicIlless ?

    Like seriously we have to be able to get through a week or two without being completely #overwhelmed .

    Ok like we have taken on some extra #Stress #Work #MentalHealth and sure some #Caregiving . But common like surly we can still get things done. #DoEverything right?…

    Wrong !!!

    This is the reminder that we are in this situation because you didn’t look after yourself #rest #Health #Breakes #timeOff #timeout .

    That’s right super hero you’re going to have to passé a bit better. Not everyday! Not every hour! Not every minute!

    So we are sorry! Please take time to say you are sorry for not looking after You!

    See while you would love to help and save the world… You forgot!

    You have to save you!

    IT is true and the year is ✨2022 IT is true.

    Please 🙏 be kind to you.

    Please 🙏 look after you.

    Please 🙏 take time for you.

    There is only one ☝️ you.

    Someone out there needs this so this is for U

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    What’s the hardest part about being a caregiver during the holidays?

    Being a caregiver is a rewarding (but sometimes tough) role, and it can be extra challenging especially during the holiday season when the external demands are heightened.

    What do you find to be the hardest part about being a caregiver this time of year? What tips do you have for other caregivers who are also navigating the holiday season?

    💜 P.S. We hope you can take a little time for yourself to rest and recharge.

    #Caregiving #Caregivers #MentalHealth #Depression #Anxiety #CheckInWithMe #Fibromyalgia #Migraine #alzheimers #Cancer #MultipleSclerosis #Disability #ChronicPain #ChronicIllness #RareDisease

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    5 things to know about the flu vaccine and MS

    With holidays coming, I was always leery about catching flu that would kick my immune system into overdrive and trigger MS symptoms.

    Right in time, here's an article about the flu shot & MS. Good news: Item #1 is Flu vaccine is safe for people living with MS.

    momentummagazineonline.com/flu-vaccine-ms

    #flushot #ChronicIllness #MultipleSclerosis #Depression #newlydiagnosed #MightyTogether #Disabilities #Caregiving #Disability #Support

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    When you thought that they appreciated you. But then you discover that they think very little of you. #Caregiving #PTSD #Toxic #MentalHealth

    I’ve come to discover what my siblings really think of me. And I have to honestly say that I’m trying hard to get over feeling the way that I feel. It’s like they are moving on and living their lives. While I’m stuck swimming in a pool of emotions. I took my mother into my care in 2020. Because she was living alone 8hrs away and was mixing her meds with alcohol. And when I traveled to check on her I was heartbroken. All of my 4 siblings saw the condition she was in and also her living environment. And we did a group call trying to figure out what to do next.

    No one really knew what to do. But they didn’t seem to be doing anything about it at all besides just talking about it. I’m an at home mom so I volunteered to let her move in with me. In hopes that they will agree to help out. Which they all said they will send money to help, they will let her stay with them during holidays. All of this type of stuff lol. It’s hilarious because none of them kept their words after my mom’s first year with me. They did what they said they would do one time. But no more after that.

    It’s saddening especially when these people are those that I have also helped. I’ve traveled long distances to support them, babysat their kids for weeks at a time. I’ve loaned money. And the thanks I get for all of the good I’ve done for each one of them. Is to overhear them talk about me behind my back and call me sorry. And to actually have a phone conversation with one who accused me of neglecting our mom when I went out on a date with my husband and didn’t include her. Hmm..

    I’ve been on a journey of trying to self heal from all of this because this all happened this month. And November is almost over. And I’m still not over it. I went on a vow silence for a weekend. And it was a super beautiful experience. But two days was not enough for me to completely reap the benefits of silence. I wanted to tap into my inner peace but couldn’t really do that. I would like for it to be a month long experience but with me being a mom and having to take kids to appointments and meet with teachers it seems impossible.

    I just need to figure out another way to heal from this realization that my siblings thinks horribly of me. Although, I have been there for them emotionally and financially. Please someone give me some advice. Because my next appointment with my therapist isn’t til after thanksgiving break. And this will be a stressful first holiday that I am absolutely heartbroken by my toxic family members. #sad #HSP #Highly Sensitive person aka hsp #Depression #Introvert #FamilyAndFriends #TheMighty

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    What tips do you have for enjoying the outdoors with chronic illness?

    Living with a chronic illness or disability doesn’t mean you can’t go outside to explore or have adventures, but planning and preparing is key (and something not a lot of non-disabled people even realize).

    What are some tips and tricks that help you prepare for outside activities?

    🗺️ Need a few others? Check out Amy Denton-Luke’s new Mighty story here: 5 Tips for Exploring the Outdoors With Chronic Illness

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

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    What makes it difficult for you to self-advocate at work or school? How about at home?

    It’s very common for folks to be comfortable advocating for themselves in certain situations more than others. There are many factors that contribute to a person’s comfort level in an advocacy situation: physical environment, previous experiences self-advocating in a similar situation, level of confidence, familiarity going into the situation, etc.

    What does your self-advocacy look like in different contexts? Do you find it challenging to advocate for yourself at work or school? What about in other situations? Why do you think that is?

    #CheckInWithMe #Advocacy #52SmallThings #Selfcare #MentalHealth #Confidence #Caregiving #Parenting

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    Do you find it easier to advocate for yourself or others? Why?

    When it comes to standing up for what’s right, sometimes it feels more natural to stand up for others than for ourselves. Whether it’s due to self-esteem, confidence, the way we’re taught to communicate in our sociocultural contexts, or a whole host of other reasons, there can be a huge difference in how we advocate for others versus ourselves.

    Do you suddenly find your voice when someone else is facing injustice? Or are you comfortable speaking up in all situations? Why do you think that is?

    Share your experiences in the comments below. 👇

    #52SmallThings #CheckInWithMe #MentalHealth #Advocacy #Anxiety #Depression #Caregiving #Parenting #ChronicPain #ChronicIllness #RareDisease #Disability

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    What do you find to be the most challenging about a cancer diagnosis?

    Getting a cancer diagnosis is many things — heartbreak, anger, pockets of simplicity, grief, even gratitude. But there are parts of it that straight up suck.

    What’s been the #1 challenge for you or a loved one?

    #Cancer #BoneCancers #BreastCancer #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

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    TRUE or FALSE: I feel confident advocating for myself in medical settings.

    As this community knows all too well, speaking up for yourself at the doctor’s office can range from intimidating to downright impossible. We also all know how necessary it can be. Do you feel confident advocating for yourself in medical settings? If so, how have you gotten to that point? If not, what, if anything, do you want to change about how you feel in medical settings?

    If you could use some help with advocacy in the doctor’s office, check out Amelia Blackwater’s story about fighting for her right to have a support person at her medical appointments: Standing Up for My Right to Have a Support Person at Medical...

    #52SmallThings #Advocacy #Selfcare #Caregiving #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability

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    Happy November! A time to give thanks, and time to be thankful for so many things that we DO have. 🧡💛

    Some positivity to remind us all of how unique and special we ALL are, no matter what we're going through. Sending lots of love and compassion out!
    #Selfcare
    #PTSD
    #Anxiety
    #Caregiving
    #Stress