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Hello

Figured I would introduce myself here.

My name is Shanell and I am a 34 year old #spoonie 🥄

I am married and have 3 kids, ages 16,13 and 9.

I suffer from #Endometriosis #interstitialcystitis #migraines #degenerativedisc #Fibromyalgia along with some still being diagnosed.

I am #Disabled and find it extremely hard to leave my house, especially with me just starting to use a #mobilityaid more frequently.

I ❤️ #reading #gardening #birdwatching and playing #videogames even thought I have found it hard to do so.

In some of my support groups on Facebook other spoonies said they have met online friends here, and I should give it a try, so why not!

#spoonielife #chronicpainwarrior #chronicdisease #Disabled

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Hello 👋🏼

Figured I would introduce myself here on Insta.

My name is Shanell and I am a 34 year old #spoonie 🥄

I am married and have 3 kids, ages 16,13 and 9.

I suffer from #endometriosis #interstitialcystitis #migraines #degenerativedisc #fibromyalgia along with some still being diagnosed.

I am #Disabled and find it extremely hard to leave my house, especially with me just starting to use a #mobilityaid more frequently.

I ❤️ #reading #gardening #birdwatching and playing #videogames even thought I have found it hard to do so.

In some of my support groups on Facebook other spoonies said they have met online friends here, and I should give it a try, so why not!

#spoonielife #chronicpainwarrior #chronicdisease #Disabled

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Able Bodied Are In Greater Need of Prayer

“If our primary perception of ourselves is as people who can see, here, or walk — over those who can’t do those things — the sin of stereotyping and excluding remains prevalent. According to Jesus, those who think of themselves as “able-bodied“ may be in more need of healing than those who are disabled… Figurative or not, the fact that a disabled person makes 2/3 of us uncomfortable exposes the need for deeper healing. Instead of dismissing those statements as merely figurative, we should consider how to embrace disability as a mark of greater understanding about God. Disability acts as a method for revealing the living God to the community, not something that always needs to be prayed away to showcase God‘s power.”

— Dr. Amy Kenny in ‘My Body Is Not A Prayer Request’

#Prayer #Disabled #Healing

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How does this graphic make you feel?

It’s okay if you sometimes feel jealous of your able bodied peers. It’s hard to watch people enjoy things you can’t. #ChronicIllness #Disabled #bedbound

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This is me!#ChronicPain #Disabled #Depression #MightyArtRoom

If you unscrewed your head, what would your friends see? Inside my head, this is what you'd see
My emotions, dreams, hurts..... everything is is expressed by my needlepoint. How my emotions sometimes blend into each other. There's some anger, some hurt, victories and defeats. There's also some beauty where I embraced acceptance.
My life.
So Mightys,
I'm Sashahans, and this is (the real) me! Enjoy the view!

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The Morpho Machine And The Magic Of Life’s Potential

I wasn’t sure I was going to really get into it. But after two episodes of ‘The Big Door Prize‘ I was hooked. There really was something magical about the way each character wrestled with identity and meaning. It was like the telling of an old fable — while the story was entertaining and fictional, there were some profound truths that reflected deeply in reality.

It really isn’t a new story. In fact, if your a fan of some of those old spaghetti westerns with Clint Eastwood, you probably would recognize some of the very similar elements — a stranger comes to town, turns much of the community upside down, transformers several of the marginalized characters (like the little person or the lonely widow) by empowering them or causing them to question their relationships in the community, and overturning the power structures along the way. Just so happens in this case that the stranger is a machine.

Here’s the question that really grabbed my imagination though… What would you do if your life potential came out as: DISABLED?!

Seriously, would you have it printed on a blue sweatshirt and wear it everywhere you went? Probably not. And like some of the characters in the show, you probably wouldn’t be telling others about it to quickly either. Although, most would probably notice it right away. In truth, we probably would find it confusing as to how the word ‘DISABILITY’ was being associated with our life’s potential.

In most cases, the word disability carries a certain stigma and negative meaning with it. We avoid being associated with the word DISABLED because we recognize a certain fatalism, prejudice, and label to which our society places upon those with disabilities. Henri Nouwen says that:

“Fatalism afflicts us in many ways. It affects our relationships. We use labels and categories that prevent us from expecting anything new from each other.”

Nouwen, Henri. Turn My Mourning into Dancing (p. 43). Thomas Nelson. Kindle Edition.

When the word ‘disability’ is treated as a label, rather than a defined element in character, it allows prejudice and ableism to diminish the life potential and human value upon individuals. If it was instead held lightly as a revealing of defined human liminality and physical or mental embodiment, disability could redefine itself as individual and communal empowerment for potential.

This sort of fatalism and ableism is not necessarily absent from the internal wrestlings of the disabled themselves, either. They also must learn and repent of an ableist mindset in order to discover new potentials in life.

For most of my life I chose to avoid the label of being disabled. I told people that I’d rather find meaning as a person with CHALLENGES. The thought was that we need to do away with limiting words like disability because of the damaging ways society has abused it and misused its true definition. Unfortunately, I now recognize that this created a disembodiment and sort of disassociation with my physical wellbeing and personhood over the course of my life. As Hillary McBride describes:

“Our body and our personhood are so intimately connected that they can never be separated. We are not just a mind, or brain, carried around by a meat-puppet of flesh and bones. Embodiment is a kind of remembering of who we really are, because what we picked up along the way was disembodiment. But disembodiment is not how we come into the world. It can be unlearned, while embodiment, our birthright, can be remembered. So embodiment is a coming home, a remembering of our wholeness, and a reunion with the fullness of ourselves.”

McBride, Hillary L.. The Wisdom of Your Body (pp. 13-14). HarperCollins Canada. Kindle Edition.

So how can we find renewed meaning and embodiment in the word DISABILITY? Over the next few weeks I would like to explore three identity building practices I found in Betty Pies’s book ‘The Space Between Us‘. It is my hope we can find a deeper and more robust meaning as people with disabilities through understanding our Defined, our Defended, and our Deeper identity’s.

This post originally was published here: The Morpho Machine And The Magic Of Life’s Potential

#Potential #Disabled #Embodiment

The Morpho Machine And The Magic Of Life’s Potential

I wasn’t sure I was going to really get into it. But after two episodes of ‘The Big Door Prize’ I was hooked. There really was something magical about the way each character wrest…
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It hurts

The most heartbreaking thing about being diagnosed #Autistic late for me is how many benefits and possible support systems I might have missed out on when I was younger. And being ostracized for struggles and mannerisms out of my control. #LateDiagnosis #Disabled #Disability

4 reactions 2 comments
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Struggling with PTSD financial crisis

I can't work for abusive people anymore. Nearly every job I've had is toxic to traumatizing. I'm trying to sell my art directly, but overwhelmed with the business side and shutting down with high PTSD symptoms. I am applying for disability again, but it's not solving food and shelter now. I need help!I can't make rent again. I'm alone and drowning facing eviction every month.

#CPTSD #developmentaltrauma #Disabled #housingcrisis #toxicworkplace #ChronicDepression #exhausted #toxicfamily

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Hello! I'm New...

My name is Serieve (imsmandrews). I just signed up to The Mighty today (03/23/2023). My "About Me" section is filled out, if anyone is interested. An adult, I live in Ontario, Canada. My main Chronic Illnesses | Disabilities are a Brain Injury, Hemiplegic Cerebral Palsy, MECFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), and various Neurological symptoms. MECFS has very much derailed my life; I'm mainly housebound, am often in bed (not by choice), and I cannot work mainstream currently (eg. 8-4, 9-5).

I dislike most willful ignorance and stupidity (Ableism comes to mind).

Does anyone know if there is a place on here to ask questions about site preferences How-To's and related?

What are some things newcomer members like myself should know about The Mighty?

After checking out Groups and Topics, where should I go from here?

#Canada #Disability #BrainInjury #MyalgicEncephalomyelitis #ChronicIllness #InvisibleIllness #PrematureBirth #Disabled

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