workfromhome

I wish my employer would understand truly how much it helps to work from home instead of seeing the hybrid policy of 3 days at home and 2 days in the office as minimal and pressuring me to come in more often. I work best from home for so many reasons not the least of which includes delayed sleep phase syndrome and chronic pain. I focus better at home without the distractions and noises of an office. When I am in the office to work, it is chaotic for me and I get less done and I feel physically stressed and it causes pain flares. I have an accommodation note from my doctor but I don't want to use it because then it can become contentious. Yes it is illegal to discriminate against someone because of a disability but it happens all the time and you still have to fight it. And I don't have the spoons or energy to do that. I need the job. I'm just very disappointed that work from home is still seen as not working as much when it's clearly the opposite for me. #workfromhome #remotework #SymptomManagement

So, I’m having a really bad day today. I have a part time job sewing table cloths 4-5 hours a day depending on how I feel, 5 days per week. This morning I had to call in to tell them I was coming in one hour later bc I needed more sleep.

At home, I have an art quilting business that I don’t want to give up, it’s hard to make money at it continuously, and it’s what I totally enjoy to do. Just so you have that background information.

All the while I sewed at work today, I was thinking that I really wanted to be home and sewing in my basement. When I come home from my part time job, im exhausted and/or have to cook so I can eat bc im on a special diet. I have not worked in my basement and really miss being down there. So much!!! I haven’t had the energy to clean my basement, or complete the quilt that im working on as a job (thank God that this customer is very patient).

The other thing that I continue to think about is if/when is my boss going to get fed up with dealing with me bc im sick a lot and cannot work the full time job, and always complaining that I cannot lift boxes, fold the tablecloths bc Im hurting and not feeling well.

Yet, if I quit my part time job and focus on my art quilting business, there will be a lot of people disappointed in me bc im not making steady money.

This lead me to think, “How do other people with chronic pain and fatigue deal with their work and disease?” So, if you could, please share with me how you handle this situation. #Working #Fibromyalgia #Depression #workfromhome #ChronicPain #ChronicFatigue

There is no good reason to undo all the accessibility that has happened over the past year. They gave us such grief about wanting to be able to accomplish things from home, until "they" needed to be able to do so. Then, magically, it was figured out. So they've proven they can. Choosing not to is discriminating against all of us that drastically need remote options for work, appointments, education, government & community programs, etc. There is no reason the same things put in place during the pandemic can't be made permanent. Other than it may interfere with their profit somehow- which is not a good enough reason. Neither are archaic notions about what "working" is. I'm really frustrated with the world right now. As humans, we weren't meant to be focusing on money above all other things- which is what is forced on us, considering it literally takes money just for survival. Countries should be pitted against each other- they should be working together to progress the human race. We are stuck in what I believe they'll eventually label "The Age of Money" or something similar. One day, when our children figure out that how it's been done up until now is not working, and it's time to take a different approach. We are holding ourselves back by not learning from each other, and working together to make sure all humans have the basic requirements for survival. Competition is doing what it is meant to, but it's also having a greater impact of restricting communication, and preventing cooperation. It's all about who can make the money off of whatever rather than what it means for society, and that isn't doing us any favors. For more from me, visit the link in my profile #ChronicIllness #ChronicPain #ChronicFatigue #InvisibleIllness #Spoonie #MyalgicEncephalomyelitis #fibrowarrior #Fibromyalgia #MultipleSclerosis #MentalHealth #remotework #workfromhome #Accessibility

I have depression and my cats are essential in dealing with it. They give so much love and they’re so sensitive and intuitive that they know when you need love or cheered up. They each do it their own way. Some cats will shower you with affection, some stay near and take care of you and others are little clowns who try to make you laugh. esacare.com/cats-mental-health-author-rayne-hall-sharing-her...