Autonomic Dysfunction

Little things that make your life a little bit easier . Weather it’s discovering a new method to do something. I’m a strong fan of work smarter not harder and implementing that on a regular. Physically , work, life the list could go on.

I’m not promoting nor have I been asked to post this. I cropped the best I could . The arthritis cap though , come on pharmaceuticals jump on this trend the majority of your clients are in need of some sort of medication . I know I take 16+ a day and sometime contemplate putting off filling my weekly medication holders. Just because my hands are hurting and not working with me to handle different size pills and or open 16 !!! Caps !!! That are not necessarily arthritis friendly. Just saying this would save so much time and energy .

What are some “the little things” that work for you or discovered read about heard from a friend of a friend expierenced etc

#MentalHealth #RheumatoidArthritis #AutonomicDysfunction #RaynaudsPhenomenon #Depression #MixedConnectiveTissueDiseaseMCTD #ChronicFatigue

Needing to give myself a little extra grace today.

Pain day is at a blackout point trying to manage. Holding out on pain medication as long as I can. As the tears roll down my face trying to see if I can make it through a work day in office.

Frustrated. As I feel pain my body tightens trying to hold everything together causing the pain to flare more. Why can’t my body do what it’s supposed to

First and for most I had this whole spewl written out then my phone messed up and here we are trying this again. Here goes nothing.

This quote in the image rings the constant nag of the time watching it as it seems to drag by. My body as a pretty good internal clock down to a minute or two from the actual time. I always know the time but still look. The constant cycle spinning through my head as my brain never shuts off. Constantly thinking through a brain fog now, before it was just pure chaos. Not sure either is good. Making list mentally verbally sticking them thinking them when ever it can. Subconsciously consciously writing brain never shutting off. Of course it’s never what I actually need as far as information goes. Squirrel brain to say the least, completely sound though and am greatful for that even with the brain fog. I do wonder though is it worth it with all these side effects. Sitting questioning wondering am I doing it right . Is that what the doctor said . The thing a what ? Is that good or bad? Crud why can’t I remember. Some days are better than others. I’m present and in the moment, most the time.

I just want it to shut off sometimes. Not going to lie because I’m just trying to be raw and let what I’m thinking flow. I don’t like too, nor do I condone it but I have taken a little extra sleepy medicine to turn the switch off. No dreams . No terrors. No real movement. Pretty much zonked. It scares me though that I hit that point.

I question the amount my body goes on autopilot just out of pure routine and functionality . Medicine time. Time to pee. Did you take enough steps. Is that right or is that wrong. Oh wait we are only guessing because no one knows what’s up or down.

Then I stop. I breathe. I remember I am present. I am here. I am doing my best. May not be to the standards of ocd trauma brain of mine . I showed up. I did what I can at that moment. Be present. It is enough. #MentalHealth #AutonomicDysfunction #RaynaudsPhenomenon #RheumatoidArthritis #ChronicFatigue #Depression #MixedConnectiveTissueDiseaseMCTD

Biggest struggle is wanting needing to do something and your trapped. Your supposed biggest asset (your body) is the one that is your biggest kriptonite. Fighting you.

How do you handle fighting yourself ?! Mentally. Physically. Spiritually Even.

People telling you “Google recommendation” just do this. Slow down. Good thing it will be over soon.

It won’t be though. This is something that was dropped out of thin air. No notice. Just one day a switch flipped and body was like “umm nope I’m broken now” .

Not every attempt will be successful to listen to your body needs. Some days will be easier than others. Same as it’s always easier said than done.

Probably a coping reaction. You doing okay ? How you feeling ? Need anything? My response “got any extra body parts lol” but hey I need to add humor and lightheartedness sometimes, even if it’s only for my sake.

#RaynaudsPhenomenon #MixedConnectiveTissueDiseaseMCTD #AutonomicDysfunction #RheumatoidArthritis #ChronicFatigue #Depression

Has anyone ever seen the health commercial. A woman goes throughout her day and she holds up a paper mask with a drawn on smile, while hiding behind the mask on the realness of what was going on with her. Felt like this was such a important commercial because it shows a true reality.

No matter what your diagnosis is I feel like this can be applied.

I know I am for sure pretty much have done it my whole life and almost feel like it’s gotten worse sense being diagnosed with a slew of diagnoses.

Anyone else ?

#RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #MentalHealth #Anxiety

The questioning and constant assumption of “well you look normal”.

Just because I look like I am in my 20’s yet am actually in my 30’s but internally feel like I’m in my 80’s. (Just an expression, mean no disrespect ) . If I feel internally like I do what will I feel like in a year, maybe two or longer.

Sense being diagnosed I just feel like my world has been turned upside down. Not just one diagnoses but multiple and still having 0 clear understanding of any of it and why ? How ? When ? What ? Where ? Etc

I am used to being everyone’s go to person the fixer. Now I just feel like a rock stuck in a river as everyone else keeps flowing on by with life.

How do you navigate the difficult question of but you look normal, you must be healthy. Trying to explain…

Having autoimmune diseases that aren’t physically always obvious can add to our taxing days already .

#MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #MentalHealth #RheumatoidArthritis #Anxiety #ChronicFatigue #Depression #AutonomicDysfunction