alwaysinbed

Let's think about accessibility and comfort today.

Spending a lot of time in bed makes your bedroom or other living space a very important place. Making sure those places are comfortable, accessible, and tailored to your specific needs can be a big help in managing symptoms or getting around more effortlessly.

What's one thing you can add to your living space to improve your quality of life? What's something you already have that you would recommend to someone else?

Let us know in the comments below! ⬇️

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed

I saw the post about bedside table and this is mine. It's a cute metal plant stand, (but I killed all my plants). It's been used for books and nick nacks, etc...now it's my bedside "everything I need" table. I plan to cover box with contact paper, I needed a bit more space, cuz things kept falling off. I have it on 6" risers so it's higher and easier to get to.

For keeping my tea/cocoa/coffee warm I have a cup warmer. To Keep bugs/pet hair/dust out of my drink I have a cute bowl cover. (And a straw cover). I keep critter treats on bottom shelf. I have OTC meds, lotions, etc...
#alwaysinbed
#ChronicIllness #organization #Selfcare

We all have different needs and preferences when it comes to picking the right mattress, especially for those of us who spend a lot of our time in bed. Some of us may prefer firm mattresses, others soft or memory foam, maybe even Tempur-Pedic (or for the real adventurers among us… water!).

What type of mattress do you prefer? I like my mattress more on the firm side with gel infused breathable memory foam.

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed

I’ve recently started doing jigsaw puzzles on an app on my iPad. Anyone else do these? They are a fun and fantastic distraction while in bed!
Hope you are having a good day, Beddies! I wish you good days ahead and lots of reasons to smile
Raven #ChronicIllness #ChronicDepression #ChronicPain #MultipleSclerosis #ChronicFatigue #Lupus #bedbound #alwaysinbed #Nerve and joint pain #Anxiety #AutoimmuneThyroidDisease #HypothyroidismUnderactiveThyroidDisease #TheMighty

Do you have any comfort items, accessibility tools, or even pets that help you while you're in bed? What makes your bedside helper helpful to you?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis #Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed

If you have Lupus, Fibromyalgia, and MS like I do, or if you have just any one of these three, I know you know the pain of muscle spasms in your ribs back shoulders and chest. Last night I was awoken at 1:30 in the morning to blinding excruciating pain. I dared to feed my horses their grain and give my husband a break and do about 10 minutes worth of pruning my plants yesterday. This is the cost.
Why does it have to be SO painful?? It’s not like I bench-pressed a Buick or something!!
Anyway, spending the day in bed watching tv and playing games on my phone ( one armed ). Giving my worse shoulder a bit of a break.
Anyway, if anyone can relate, or lend some encouragement, I sure could use it today. This makes me so sad. I’m trying to stay grateful for my life and positive in my thoughts though.
Smiles and hugs to you all,
Raven
💕💕💕

#Fibromyalgia #MultipleSclerosis #Lupus #TheMighty #DistractMe #alwaysinbed #ChronicIllness #ChronicPain

Happy Friday, friends! I hope you're all having a low-symptom day.

However, when you do have a painful day or are experiencing lots of symptoms, what do you like to do? What movies or TV shows bring you joy?

When I'm stuck in bed all day, I love to do crossword puzzles or play the same Nancy Drew computer games I've played a million times before. I'm also a big fan of rewatching my favorite Parks and Recreation episodes!

So, my fellow zebras, what do you watch, read, play, or listen to when you have to take it easy?

I'm looking forward to getting new recommendations!

#EhlersDanlosSyndrome #POTS #CheckInWithMe #DistractMe #Spoonie #ChronicPain #ChronicFatigue #hypermobilityspectrumdisorder #alwaysinbed #Migraine

Read any good books lately? #alwaysinbed #ChronicIllness #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #Fibromyalgia #Gastroparesis #Lupus #bed #ChronicDepression #MyalgicEncephalomyelitis

Finding the most comfortable place to eat can be tricky sometimes especially since there may be places where you prefer to eat and places that are off limits. What are your opinions on eating in bed? It’s likely unavoidable to eat in bed especially when most of your time is spent in bed because of health challenges, but some people have rules. Do you have rules in what foods you enjoy eating in bed vs. what foods you would prefer not to eat in bed? Do you eat everything in bed? Are there certain times of the day where eating in bed is ideal, while other times not so much?

There is no wrong answers!

Let's share in the comments below 👇

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis
#IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD
#ChronicEpsteinBarrVirus #MentalHealth #Depression #ChronicDepression #Anxiety #PanicAttack
#InvisibleIllness
#alwaysinbed

Being in bed all the time can certainly encourage us to be a little creative in ways to keep ourselves from going stir crazy with boredom. Recently, I’ve started to sketch again. It’s been over 20 years since I’ve done so, so it’s like learning all over again, especially since I now have trouble with fine motor skills. I’ve done a tree, and I’m working on a squirrel ( see photo ) so far. It’s tough but I’m starting to get a groove going! Pretty excited about it.
Have you guys started any new hobbies or projects that you’re doing from bed? Please share and let us know. It might just lend someone else don’t encouragement to try. Hope you’re having a great day, Beddies! #ChronicIllness #ChronicDepression #Neuropathy #PeripheralNeuropathy #Gastroparesis #Disability #bed #alwaysinbed #Lupus #MultipleSclerosis #BackPain #ChronicPain #MyalgicEncephalomyelitis #InflammatoryBowelDiseaseIBD #AutoimmuneDisease #DistractMe #MentalHealth #TheMighty