mobility

Enjoying my holiday and was happily surprised when I visited the Canterbury Museum in Christchurch today. An good prepared route for people with mobility issues to see everything without searching and asking for elevators and directions

#Heat #Fatigue #mobility #MultipleSclerosis #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

I have been a contributor for some time and I can’t believe I’ve only written two articles! I have had #MyalgicEncephalomyelitis for 12 years, I am severely affected - housebound and bed/sofa bound. I developed #Gastroparesis 5 years ago. I used to be a regular figure in the M.E community (you might know me from my books!) but when my husband and I started our own business around 2019 all of my energy was put into that. So much has happened. In April 2021 I was diagnosed with #GeneralizedAnxietyDisorder then two days later my brother broke my heart by walking out of my life, choosing to believe his girlfriend (who has previous!) over his big sister who he always said was his second Mum. This ripped my world apart. The shock… the disbelief.. because as siblings we were so close. I couldn’t have imagined it in a million years. Long story short I fell into a deep depression, for about 3-4 months. Wasn’t working, wasn’t really even living. All of this on top of #SevereME is a hell I wouldn’t wish on anyone. My husband and I lost a lot that year. We are still picking up the pieces. I I have been a contributor for some time and I can’t believe I’ve only written two articles! I have had #MyalgicEncephalomyelitis for 12 years, I am severely affected - housebound and bed/sofa bound. I developed #Gastroparesis 5 years ago. I used to be a regular figure in the M.E community (you might know me from my books!) but when my husband and I started our own business around 2019 all of my energy was put into that. So much has happened. In April 2021 I was diagnosed with #GeneralizedAnxietyDisorder then two days later my brother broke my heart by walking out of my life, choosing to believe his girlfriend (who has previous!) over his big sister who he always said was his second Mum. This ripped my world apart. The shock… the disbelief.. because as siblings we were so close. I couldn’t have imagined it in a million years. Long story short I fell into a deep depression, for about 3-4 months. Wasn’t working, wasn’t really even living. All of this on top of #SevereME is a hell I wouldn’t wish on anyone. My husband and I lost a lot that year. We are still picking up the pieces. I deteriorated significantly with my #CognitiveIssues & #mobility and I won’t lie, I’m a mess. After coming out of a 6 month long #Gastroparesis flare I can now try and get the help I need. Anyways that was a super long essay but I can’t wait to write another article, and having been away from #Spoonie friends for so long, I forget that there are people who care. Sending love and hugs to anyone who needs it right now. Hay xxxxxx

Anyone got some #Lifehacks for managing loss of mobility? My hand, wrist, and arm function has gotten so much worse the last few years, since I haven’t been able to afford to treat my #AutoimmuneDisease , and it is hard to cope! Folks with minimal hand mobility - how do you manage ADLs and general functioning? My legs and feet are also poor, but I’ve dealt with that a lot longer, and it doesn’t cause as many issues. I’m unable to grip or turn or hold weight, can’t open or close my hands very well, and basically just have little balled fists to work with. I should probably see an occupational therapist but again - American healthcare is too expensive! #AnkylosingSpondylitis #PsoriaticArthritis #mobility

Photo of my hands in better times, as they started to deteriorate.