FNDAwareness

I love Kirsty-Ann Johnstone’s re-writing of the classic Christmas song ‘The 12 Days of Christmas”! Such an amusing and creative way to raise awareness of FND.
#FND #FNDAwareness #FunctionalNeurologicalDisorder #FunctionalMovementDisorder #FunctionalNeurologicalSymptomDisorder #ChronicIllness #ChronicPain #SeizureDisorder @sassyfndlife

This is just a short post to show my gratitude for your patience, support and understanding while I have been experiencing health challenges that have caused me to not post as much as I would like to, and usually do. As I’m sure you’re well aware of, living with chronic health conditions brings many challenges and I know that you will all be able to relate to the feelings of wanting to do something and actually having the physical ability to do it. Thank you all so much, I hope to be back soon. 🧡💙
#FunctionalNeurologicalSymptomDisorder #FND #fndaware #FNDAwareness #Fndlife #ChronicIllness #ChronicPain #JointHypermobilitySyndrome #BackPain #MentalHealth #Anxiety #Depression #Migraine #Spoonie #Selfcare

FND Bingo is more than just a game or “a bit of fun” – it helps to raise awareness of #FunctionalNeurologicalDisorder and also helps to demonstrate how this debilitating condition differs from one person to the next!
This ‘FND Bingo Card’ – created by the fantastic’functionallyjess’ of Instagram – has meant that thousands of people from across the globe have been able to share their ‘Bingo Cards’ of symptoms.
Here is a blank ‘FND Bingo Card’ for anyone who is interested in joining in both playing FND Bingo and also raising #FNDAwareness .
To play:
* Save the ‘Bingo Card’ where you can edit the picture (for example your photos on your phone).
* Edit the picture by adding a tick, a line, anything to highlight the symptom(s) you have.
* Post your completed ‘FND Bingo Card’ to your social media accounts.

#FND #FunctionalNeurologicalDisorder #FNDBingo #fndhope #fndhopeuk #FNDAwareness #fndaware #FNDAwareness2023 #FNDsymptoms #FunctionalNeurologicalDisorderAwareness

This is exactly what I, and countless others, do everyday - we put up a ‘public persona’ to hide what we’re truly going through. We pretend that we aren’t: in #AGONY or #depressed or #exhausted or #anxious . We pretend because we are #scared of how others would treat us if they really know what we were going through. The thing is though, by pretending we are something we’re not, we are giving ourselves more #Stress but also denying someone the opportunity to help us deal with the things that are really going on in our lives.
#itsokaynottobeokay #itsoktoneedhelp #ChronicIllness #chronicillnessawareness #ChronicPain #chronicpainawareness #mentalhealthmatters #MentalHealth #MensMentalHealth #CollegeMentalHealth #MentalHealthAwareness #Disability #IntellectualDisability #DevelopmentalDisability #InvisibleDisability #disabilityawareness #invisibleillnessawareness #FunctionalNeurologicalDisorder #FND #FNDAwareness #JointHypermobilitySyndrome #ChronicMigraineSyndrome #ChronicVestibularMigraine #HemiplegicMigraine #Migraine #BipolarDepression #ChronicDepression #Depression #ChronicFatigue #Anxiety #SensoryProcessingDisorder #BrainFog #PanicAttacks #PanicDisorder #notalone #BeYourself

Sorry, I’ve been a bit absent recently! I hope you didn’t think I’d forgotten about you all? You’ll be glad to hear that my chiropractor fixed me so now I’m back (pun intended 🩻🤗🤣)!! My body may be held together by Kinesiology Tape but it helps when you can have some fun with it! 🤷🏻‍♀️😂 I’d be lost, in agony, and falling apart, without my amazing chiropractor!!
👏🏻😍😘💝
#functionneurologicaldisorder #FND #fndwarrior #fndaware #fndhope #fndhopeuk #fndaction #FNDAwareness #JointHypermobilitySyndrome #Hypermobility #HypermobilitySyndrome #HypermobilityWarrior #JointPainWarrior #Jointpain #JointPainRelief #JointHypermobilityAwareness #ChronicFatigue #EhlersDanlosSyndrome
#ChronicPain #Chronicpainwarrior #ChronicPainRelief #ChronicHeadaches #ChronicMigraines #chronic #ChronicIllness #Painrelief #chiropractic #chiropracticadjustment #dryneedling #dryneedlingtherapy #Acupuncture #kinesiologytape #kinesiology #kinesiologytaping #ktaping #ktaped #SpoonTheory #Spoonie #SpoonieProblems

I saw this picture and it instantly made me think of my fellow Mighties! It doesn’t seem to matter what I’m going through, or how I’m feeling, I know that you are always here for me whenever I need you. 💝😍 Your kindness, compassion, support, and understanding, during my times of need have not gone unnoticed, nor will they be forgotten. You have been there for me much more than the majority of my family and friends have been, and that means far more than words can say. 🥰 When I got FND – which I still feel is short for “Friends/Family Now Disappear” – all my friends disappeared and I felt so lost and alone. Then I found the amazing people on The Mighty and discovered that I am not nearly as alone in my struggles as I used to feel. Thank you to each and every one of you wonderful people! 😘💝
#FunctionalNeurologicalDisorder #FND #FNDAwareness #52SmallThings #MightyMinute #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #ChronicDepression #Disability #JointHypermobilitySyndrome #JHS #ChronicIllness #ChronicPain #Grief #ChronicFatigue

An FND warrior could face these symptoms on a daily, weekly, monthly basis

I am affected by most of these symptoms. Actually all expect facial spasms and blackouts. It's amazing what we learn to cope with when living with a chronic illness.

#FunctionalNeurologicalDisorder #FNDAwareness #letstalk #FNDsymptoms

I have always loved having pretty looking nails, it always makes me feel better. I used to bite my nails as a kid and my mum tried everything to get me to stop but nothing worked. Then she decided to paint my nails one day and they looked so pretty that it didn’t want to mess them up so I didn’t bite at my nails. Such a simple solution to what is a tricky habit to break. Since then I have always liked getting my nails done, but 4 years ago FND robbed my of the ability to go to a nail salon and have my nails painted and designed. So, since I don’t use nail extensions, I decided to take things into my own hands… literally, and started trying out different designs on my nails. It worked rather well because I had pretty nails again and it also gave me a way to still be creative and artistic too. It might take me a while to do my nails because of my health but I still get there in the end and that gives me a sense of accomplishment. These are some of my favourite creations that I’ve done and I’m sure I will have more along the way. It might seem like a small thing but it’s the little things that make the biggest difference. 💅😍🥳
#52SmallThings #MightyMinute #FunctionalNeurologicalDisorder
#FND #fndaware #FNDAwareness #FND2021 #fndhope #fndhopeuk #LetsTalkFND #fndwarrior #JointHypermobilitySyndrome #JHS #JHSAwareness #JHSWarrior #ChronicIllness #chronicillnesswarrior #ChronicPain #Chronicpainwarrior #Disability #MentalHealth #Depression #Anxiety #creativetherapy #NailArtTherapy #ItsTheLittleThings

Functional Neurological Disorder (FND) is the second most common condition that Neurologists see and treat - headaches is the first - however, very few people, including a lot of medical professionals, have ever heard of it and even fewer know how to treat it. This condition has not only destroyed my life, it’s destroyed millions of others too. Living with any health condition and/or disability is hard enough, but, when it’s something that hardly anyone has ever heard of, it causes added stress, depression and anxiety to an already difficult situation. Without the amazing support, acceptance and understanding of my fellow Mighties, and the wonderful charity, FND Hope, who have actually provided me with more support and information than my medical team has, I think I would still be feeling lost and confused. FND Hope even provided me with a Patient Information Booklet which provided more answers than my medical team had. 🧡 This ‘World FND Month’ I would love to raise awareness of this awful condition in the hope that it will help everyone living with FND, myself included, feel more accepted by the world. Hopefully one day there will be a cure, or better treatment options available, for FND patients but in the meantime, something that would be really helpful would be not hearing replies such as, “What’s that?” And, “I’ve never heard of that.” Whenever I, and other FND patients, say “I have FND”. 🧡
#FunctionalNeurologicalDisorder #FND #FNDAwareness #fndhope #FND2021 #LetsTalkFND #Disability #ChronicIllness #ChronicIllnessAware #ChronicPain #ChronicPainAware #MentalHealth #Depression #Anxiety #Stress #MightyTogether #MightyMinute #CheerMeOn #52SmallThings

Hi everyone, sorry I’ve not posted anything for a few weeks - I haven’t been very well lately. Thankfully it’s not Covid related, I have been battling severe Tonsillitis and it’s been really draining all my energy. It’s hard enough living with chronic illness without having to battle extra health issues on top of it all. The main thing is that I am back on The Mighty, I’ve missed you all! 💝🥰
#CheckInWithMe #MightyMinute #52SmallThings #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #Stress #Asthma #Disability #FunctionalNeurologicalDisorder #FND #FNDAwareness #fndwarrior #JointHypermobilitySyndrome #JHSAwareness #JHSWarrior #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #ChronicPain #chronicpainawareness #Chronicpainwarrior #SpoonTheory #spooniewarrior