juvenile rheumatoid arthritis

Join the Conversation on
juvenile rheumatoid arthritis
1.4K people
0 stories
95 posts
Explore Our Newsletters
What's New in juvenile rheumatoid arthritis
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Strong thunderstorm kinda day. Rosie sticks close to my side.

To ease her worry of thunder I asked Alexa to sing lullabies and discovered that the country genre soothes her SO much! Lol I like the morose kind of lullaby songs.

Since we got Rosie she is enamored with my singing. It surprises me to no end how she will wake out of a deep sleep when I start to sing. She loves it! And she makes me love it all the more too!

I use to sing All the time jamming out to all sorts of pop and rock. Once my pain got drastically severe at 17, all vibrations hurt from movement like others walking around to any musical sounds. I haven't jammed to music in a good decade (12years really).

My best friend who committed suicide when we were around 16, was a HUGE fan of Sinatra and bluesy tunes. He was in every play as soon as we were in high school. He adored music.

Unbeknownst at the time, he gained bipolar disorder with major Depressive disorder.

I was able to help him keep going for a few years but it was hard and he slowly distanced himself from everyone but me.

No one else knew what was going on with him. After he died, I had to explain to his family, my family, police, and other friends how bad things were for him.

They were all so very surprised. I knew he romantically liked me as soon as we met 4 years before. He wasn't shy about it but I hated it so much. I knew I would never like him back.

After a hard first year we became very dear friends.

He knew me so well. To this day he is the only one who could know as soon as any pain hit-before it became full body 24/7. It was so wonder and was the first time anyone just got me when it came to pain.

That last day he came right out and asked me to be his girlfriend. After I said no he became mean and tried guilt and everything to get me to say yes. Before we had said goodbye after walking home I knew he wanted to make me kiss him and would have assaulted me if I hadn't run inside my empty house and locked the door.

That fear caused nightmares that lasted 10years. I saw every side to him. But his friendship is something I miss so much. Just to talk to him like the old days.

I know when I see him again many years from now when I die, I am going to give him a stern talking to and then hug him and tell him absolutely EVERYTHING he has missed.

Because of how he ended things, I avoided plays and singing. And then my pain severely increased and music became something I would use earplugs to avoid.

Now with Rosie bringing music back into my life in a happy wonderful way, it is like coming home after a long long journey. It is like I have my best friend back again to join in sorrow, pain, joy, and happiness.

For the first time in a LONG while, I feel a lightness in my step and a big smile on my face, just as is meant to be. ✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #BipolarDepression #BipolarDisorder #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #Hypersomnia #HighBloodPressure #MentalHealth #MightyPets #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #Upallnight #IfYouFeelHopeless #ShinSplints

15 reactions 4 comments
Post
See full photo

In just a week Lil Rosie will be 5! The perfect fun sassy best buddy a girl could ever have!

When we got her I was more depressed than ever. Immediately we saw how much good she could bring to my life. She has been with me through so much already. Having her beside me makes the world a much brighter place!

Unlike most small dogs, Rosie doesn't bark or bite or nip. She is a quiet little thing though she LOVES to groan out her distress-it is hilarious!

When we got her she never wagged her tail though she did spin when she was happy. Now we have brought happiness and love in her life, her whole booty wiggles in happiness!! It is the most adorable funny thing!

She is the BEST!!!

WE LOVE YOU ROSIE!!!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #JuvenileRheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #IfYouFeelHopeless #Upallnight #CheerMeOn

(edited)
59 reactions 13 comments
Post
See full photo

Little miss Rosie's bday is on the 15th! Look at that big grin!

I got her 3 new toys she will Love and a new treat to try!

She will be turning 5! 😱
We got her when she was 3 a few months from 4. She had previously been bred over and over. She had been kept in a tiny cage. We got to introduce her to what being a dog really is like and now her whole body shakes when she wags her tail. She spins when she is extra happy and she has quickly become my little shadow trailing me everywhere. I wouldn't have it any other way! 💕❤️💕❤️💕❤️

Happy 1.5 years with us little one!!! I am SO glad we were led to each other!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #Upallnight #SuicidalThoughts

33 reactions 10 comments
Post
See full photo

A great reminder for myself to chase after only happy things.

If I haven't felt happy in a bit it helps a Lot to plan something I love to do in the next few days. That way I can rest up and save any energy for the True Important Things!
In a world where daily life can be a true struggle with so many health struggles and trials, the good things in life are more important than Ever!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #ComplexRegionalPainSyndrome #Upallnight #IfYouFeelHopeless #Hypersomnia #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #musclespasms #MultipleAutoimmuneSyndrome #MentalHealth #MemoryLoss #MightyTogether #Migraine #HighBloodPressure #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

20 reactions 2 comments